Transcript
Dr Andrea Young Hello, everybody, my name is Andrea Young, and I’m on faculty in the Department of Psychiatry at the Johns Hopkins School of Medicine, where I’m also the Assistant Dean for Graduate Biomedical Education and Graduate Student Diversity. And I’m very grateful to have the opportunity to talk to you about racial and ethnic disparities in children’s mental health services’ use and potential solutions. Thank you very much to the Association for Child and Adolescent Mental Health for inviting me to give this presentation.
So, first, just a few disclosures. I’ve received research support from the National Institutes of Health and the Brain and Behavior Research Foundation. I’m on the Board of Directors for Helping Give Away Psychological Science, which, actually, is an organisation very similar to the Association for Child and Adolescent Mental Health, but here in the United States. And I’m on the Editorial Board for the Journal of Clinical Child and Adolescent Psychology, as well as, Evidence-Based Practice in Child and Adolescent Mental Health. So, at the end of this talk, I’m hoping that you will be able to describe racial and ethnic disparities in access to children’s mental health services, identify social structures that present barriers or facilitators to children’s access to health care, and identify one to two strategies to help improve equitable access to children’s mental health services. So, I want to leave you with a few things, not only to describing the problem, but also, leave you with a few things that can be potential solutions to the problem. So, to do that, we are going to first, review some background and a brief history of health disparities, including contributors to disparities and the impact of racism on health. We will review some research that I’ve done, briefly review some research that I’ve done on racial and socioeconomic disparities in access to care, and then I’ll wrap up by talking about possible solutions, specifically in research and practice.
But first, I would like to start with a case study. So, this is a picture of a young Black girl, between the age of nine and ten. She is posing with her mother at – and she’s in about – in fifth grade, at a parade, and she’s there representing the safety patrols. And the thing that is unique about this case study that I’m sharing with you is that the little girl in that photo is me. And so, I’m sharing this because I wanted to describe some of the experiences that my family and I have had in seeking health care.
So, at – by the time I – of – I was this age, the age that’s pictured here, it was pretty obvious to my parents and other adults in my life that I had some quirks. ‘Quirks’ is what my mother called them, but using the knowledge that I have now, I know that those quirks would best be characterised as OCD, or obsessive compulsive disorder. Having to make any decisions other than the most perfunctory made me freeze, made me feel panicky. Things had to be organised a certain way in my room and in other places in the house, and I had to very closely follow every rule, and had a lot of trouble when other people didn’t, and this first started for me around age four.
I had a family history of mood and anxiety disorders, and my family had experience with mental health providers, but typically of different racial backgrounds. I recently had a talk with my mother about her experiences as a caregiver, and she noted that for my siblings, or cousins for whom my parents were guardians at times. There were times when it was clear to my parents that professional help was warranted, but after starting care, it often didn’t feel safe or didn’t feel comfortable to remain in long-term. So, for me, my parents did their best at home and luckily for me, their best was pretty amazing. My mother wouldn’t accommodate my compulsions by making decisions for me. She would give me a time limit to consider my options and make a decision for myself. My parents helped me to identify healthy coping strategies to use when I felt panicky or overwhelmed, and they helped me to identify my strengths, and made sure I was using them in healthy ways. So, in short, my parents were really excellent Cognitive Behavioural Therapists, without knowing it, and I’m very lucky.
But what I’m hoping that we can do today, what we can discuss today, is how we, as mental health providers, Educators and Researchers, can do better. For families of colour like mine, who for generations have experienced discrimination and oppression, seeking professional care can feel and be riskier than it should. Our care settings feel less welcoming, understanding and validating than they should, and I want to use my mother’s words here, because I think she put it so eloquently when she said, “Our history is such that if there’s a problem, especially with your child, you use the tools you have. Especially if you’re not sure if seeking professional help is going to do more harm than good.” So, let’s talk today about how we can do more good consistently and equitably.
Next, I want to briefly review some background and history of health disparities. So, most of you will be familiar with some of the things that we’re going to share today. This won’t be news or surprising to you, but epidemiological studies show a high prevalence of mental health problems but very low service use among children, and adequate treatment is related to reduced current impairment, as well as reduced likelihood of having mental health problems later in life. So, receiving adequate mental health care early is extremely important.
Unfortunately, we know there are disparities in access to mental health care. So, community-based studies show that correlates of children’s outpatient service use include things like socioeconomic status, parent education, family structure and race and ethnicity. And disparities in access to mental and physical medical health care are well established. We know that youth of colour are less likely to initiate treatment, they’re less likely to stay in treatment and less likely to receive adequate care once they’re in treatment. So, even families and youth who are able to overcome significant barriers to initiating services continue to experience barriers to remaining in treatment or receiving adequate care.
So, again, just noting, these disparities are longstanding, and rooted in a history of racism and discrimination, and here in the United States, both the American Psychological Association and the American Psychiatric Association in the past couple of years have acknowledged their roles in perpetuating racism and discrimination. They both issued apologies, as well as some important action items, which I appreciate. So, the recognition that acknowledging is helpful, but it’s even more important to have some action items to describe how you’re going to remedy past errors. And in the UK, the British Psychological Association has made similar statements. So, there’s – they issued a statement on racial injustice and that, also, sort of, describes the history of the British Psychological Society in the same – similar way that the American Psychological Association did, along with some action items that they would be engaging in to help remedy past errors.
So, one thing that – one question that people often ask when I talk about disparities in access to care, is, you know, people will say, “So, we’ve known – you described that we’ve known about racial disparities for a long time, they’ve been longstanding,” I use the phrase longstanding a lot, “so, what’s going on? What are people doing about it, and have they improved over time?” And the short answer to that question is no. Unfortunately, racial and ethnic disparities in access to mental health care have not improved over time. So, this was one study that was done in adults between the ages of 2004 and 2012, and in that time, disparities did not improve, and in fact, for Black and Hispanic people, disparities were exacerbated over that period of time. This study here, this Cook et al. study, was – had an adult focused sample.
So, let’s take a look at kids. So, this is a more recent study that’s looking at service use in a paediatric population. So, just to orient you to the slide, I know it’s a bit small. Panel A is showing any mental health care use by race and ethnicity between the years of 2010 and 2017. So, here, the blue line represents white youth, the, sort of, reddish-orange line is Black youth, and the grey line is Latinx youth. Panel B is any outpatient mental health care – any outpatient mental health care by race and ethnicity, and Panel C is psychotropic medication use by race and ethnicity. So, any mental health care, outpatient mental health care, and psychotropic medicine use.
So, what these – what the study found was that Black-white and Latinx-white disparities in both the 2010/2011 time period, and the 2016/2017 periods, for any mental healthcare use and any outpatient mental health care use, that they persisted. They persisted from 2010 to 2011 to 2016/2017. Look – focusing specifically on psychotropic medication use, there were Latinx and white disparities for both timepoints, and Black-white disparities for the 2016 to 2017 period. And Black-white disparities in any mental health care use and any outpatient mental health care use were significantly exacerbated between the 2010 and 2011 period and 2016/2017 period. So, again, a similar story for kids as there was for adults, not only are disparities not improving, they actually have been worsening over time.
And I just want to briefly touch on outcomes. Sort of, one of the most important outcomes that we consider in mental health is suicide. Obviously it’s not the only outcome to consider, but it’s one that we obviously work very hard as mental health care professionals to prevent. So, Jeff Bridge and colleagues recently did this study examining youth suicide during the first year of the COVID-19 pandemic. So, this is – these are findings from a US national study that suggests an overall increase in youth suicide deaths across the first ten months of the pandemic.
But there was variation across racial and ethnic groups that was particularly concerning. So, here, non-Hispanic, American Indian and Alaska Native, non-Hispanic Black youth experienced significantly more suicide deaths than predicted. So, again, we have not just disparities in the access to mental health care, but we’re also seeing disparities in outcomes, and that suicide rates are increasing at a disproportionate rate for some youth of colour. So, it’s just especially important that we do a really good job making sure that there’s equitable access to mental health care, seeing as there are, sort of, increasing – disproportionately increasing rates of suicide among youth of colour.
So, I want to talk a little bit about the impact of racism on health and wellbeing. Before I do, I just want to clearly – quickly, rather, define racism. I know that that can mean different things to different people. So, when I say ‘racism’, I mean a system of repression that categorises and strates – stratifies social groups into races, devalues and disadvantages those that are considered inferior, and differentially allocates to them valued societal resources and opportunities. So, again, it’s not just categorising people. It’s also devaluing them and differentially allocating resources and opportunities.
So, many racial minoritised youth experience racial discrimination and victimisation as early as the first decade of life, so before their 10th birthday. Racial discrimination negatively impacts the health and wellbeing of minoritised youth and may create barriers to accessing care. So, we’ll talk a little bit about the research on this. So, this first study that I want to quickly summarise examined discrimination in mental health in a representative sample of African American and Afro-Caribbean youth, again, here in the US. So, using a US nationally representative sample, they found that 90% of African American and 87% of Afro-Caribbean youth experienced discrimination. So, again, this is almost a universal experience. And discrimination was associated with lifetime and 12-month major depression, and lifetime and 12-month anxiety. So, again, almost all the youth in this study had experienced discrimination, and it was significantly associated with worse mental health outcomes.
This next study that I want to briefly describe examined “COVID-19 Racism and Mental Health in Chinese American Families.” So, in this study, nearly half of parents and youth who participated in the study reported being directly targeted by COVID-19 racial discrimination online, and higher levels of both parent and youth perceived racism and racial discrimination were associated with poorer mental health. So, again, experiencing racism, particularly during the pandemic, for the Chinese American families was fairly common and associated with negative mental health outcomes.
And this final study, here, on this slide that I want to describe, is a really interesting one, sort of, took things a step forward in a way I’ll describe in just a moment, but they examined “Racial and Ethnic Discrimination and Mental Health in Mexican-Origin Youths and Their Parents Testing the ‘Linked Lives’ Hypothesis.” So, here, among Mexican-origin youth, experiences of discrimination were associated with depression, but again, they took it a step further to look at intergenerational discrimination and found that fathers’ experiences of discrimination exacerbated the link between discrimination and depression for their children. So, it’s not just one’s own experiences with discrimination, but the experiences that their parents have had with discrimination that could impact mental health outcomes. So, those are just – I wanted to briefly run through these studies, just to talk a bit about how long history of discrimination can contribute to mental health disparities.
I also really like this figure from the Kaiser Family Foundation, that describes how – a little bit more how health disparities are driven by social and economic inequities. And so, again, when we think about racism as a system of oppression that differentially allocates valued societal resources, like, this, sort of, really highlights how these resources might be differentially allocated. So, there’s differentially distributed economic stability, so thinking about employment, income, debt, medical bills, and in the area of neighbourhood and physical environment, there are inequities in housing and access to transportation, playgrounds, walkability.
In education, there’s differential access to things like early childhood education, vocational training and higher education. In the food area, there is increased risk for food insecurity and decreased risk to – decreased access to healthy food options. In community safety and social context, there are disparities in things like exposure to violence and trauma, policing and justice policies. And most directly relevant to the conversation that we’re having today, there are inequities in the health care system, including relevant to the United States, things like health care coverage, provider availability, which I’ll talk about a little bit more in the next slide, access to linguistically and culturally appropriate and respectful care and quality of care. These are all things that we will touch on.
So, things that contribute to disparities are so, the inequitably distributed financial or logistical barriers, which could include things like the distance from one’s home to a treatment facility, the availability of appointment times, of appointments at times that work for families, or difficulty taking time away from work to attend appointments. There are also systemic barriers, such as provider bias, and what research shows is a relatively smaller number of mental health care providers practicing in areas more populated by people from minoritised racial groups. And there’s also some evidence that stigma and knowledge of mental illness are contributors to disparities in access to health care, but they often appear to explain only a small portion of disparities. So, they’re not – I think a lot of times are the focus of research in mental health disparities, but don’t seem to really be explaining a lot of what’s going on.
So, what I want to do next is briefly share with you some of the rechurch – research that I’ve done in this area on racial and socioeconomic disparities in access to health care, and I’ve specifically, done this using the LAMS study, or the Longitudinal Assessment of Manic Symptoms study data. This is a busy slide. I’m going to walk you through the important pieces here, but this is a longitudinal study with a naturalistic design. All of the kids were between the ages of six and 12 when they were first assessed, when they were first screened, and they were recruited during their first visit to one of nine outpatient clinics associated with four different universities here in the United States. So, this is an entirely help-seeking population. They were all recruited during their first appointment in an outpatient mental health clinic.
The sample was screen-enriched for elevated symptoms of mania. It doesn’t mean that all – everyone in the sample had bipolar disorder. I think only, like, 20 to 25% of the kids in the study had bipolar disorder. But they were screened for things like having high levels of energy, having difficulty sleeping, talking quickly. The things that you would think of as mania but could occur in any context for them to screen into the study. So, actually the most common diagnosis was ADHD. I think about 75% of the sample had ADHD at baseline. So, there were 707 kids, again, between the ages of six and 12, that were assessed twice a year between 2005 and 2017. And they’re – have detailed, valid, reliable measures for diagnoses, psychosocial functioning and child mental health services, including the KSADS and the SACA, which is the Service Assessment for Children and Adolescents. So really great data to look at treatment engagement.
So, what I was interested in, because a lot of the data at the point that I was looking at these data, have focused on, sort of, initiating care. What I was wanting to focus more on was what keeps kids in care? What are some of the things that are associated with treatment retention? So, my objectives were to examine the possible racial and ethnic disparities in treatment retention, as well as identify other sociodemographic contributors and barriers to retention. With the specific questions of whether race, ethnicity, socioeconomic status, caregiver, education, child diagnoses and other clinical child and family characteristics predicted treatment retention over 12 months, and whether parents’ perceptions – so I think the new thing here is whether parents’ perceptions of how well the treatment matched their child’s needs contributed to the prediction above and beyond those child and family characteristics that I described. So, parents were asked to rate how well the treatment their child was receiving matched what they felt their child needed.
So, just to review what we found, so most of the kids were receiving outpatient medication management and/or psychotherapy at baseline, and only a third of the parents recorded that the treatment matched very well, so that their treatment matched what they were expecting very well, which to me, is quite low and a bit concerning. 523 had complete service use data at the 12-month follow-up, and we found just under 70% continued to use baseline services, which actually is quite high. So, about 70% were retained in treatment, so were using the same services they were receiving at baseline 12 months later.
The things that were associated with treatment retention, so race, being a person of colour was negatively associated with treatment retention, so you were most likely not to still be receiving the – your baseline treatment if you were a person of colour. Kids whose parents were experiencing more stress associated with parenting a child with mental health problems were more likely to continue to receive services. And interestingly, parents, when there was a higher perceived match between the treatment and what the child needed, on the parents’ – from the parents’ perspective, there was a greater likelihood of being retained in treatment over 12 months.
So, just to quickly review that in plain language. Being a person of colour was significantly associated with treatment dropout, and this was even after controlling for things like socioeconomic indicators, so things like caregiver education and income, as well as other clinical and demographic variables, and even after adding treatment match to the model. And so, what this means is that there were barriers that weren’t examined in these analyses that contribute to retention. The parenting stress findings that I reviewed are consistent with previous research showing that greater parent burden is associated with increased service use. And I think the really, sort of, novel finding here, which maybe is intuitive, but novel all the same, is that parents’ attitudes early in treatment, so the perceptions between match – so the match between parent expectancies of treatment and the execution of the treatment was an important indicator of the youth’s likelihood to continue treatment.
So, the implications of this, even families who – I’ve said this before, and you’ll hear me say it probably a couple more times before I’ve done talking, but even families who overcome barriers to initiate treatment face further barriers to continued service use. So, I think for those of us who are Clinicians tuning in, it’s important to be sensitive to parents’ opinions and cultural differences that may affect engagement, so what we often refer to as ‘cultural humility’. It’s important to carefully assess families’ treatment barriers early in treatment and work together with families to identify solutions to overcome those barriers. And then, lastly, to really discuss, carefully discuss, treatment plans with parents, incorporate their opinions into the treatment plan, when that’s appropriate, which I can imagine is almost always appropriate. Explain the rationale for the selected treatment modalities and offer a choice of treatments when available.
So, the next thing, so the last, sort of, analyses that I’m going to describe that I did, before we move on, is looking at adequate care. So, we know that there are barriers to starting care, there’s barriers to staying in treatment, but for me, simply looking at retention alone wasn’t really getting at what I really wanted to know, which is, what are the correlates of receiving good care and whether there are racial disparities in receiving adequate care. So, there is a couple of different ways to look – to define adequate care. So, one of the common ways, common, sort of, operationalisations of adequate care is this minimally adequate treatment definition, which is typically described as “receiving at least four mental health care visits with any mental health care provider if the person is also receiving medication,” or in the absence of medication it should be eight visits. And so, there’s been lots of research studies examining access to adequate care, using this definition, and there have been racial disparities found using that definition. And while I think it’s a useful way to think about adequate care, it doesn’t allow for any adjustments for individual clinical characteristics, so things like comorbidity and severity. So, another approach is the expert consensus approach, which considers the appropriateness of different therapies and the comprehensiveness of care, given a child’s profile of comorbidities. It is based on published practice guidelines and recommendations, and this is the option that I chose, if you can’t tell. And so, in this instance, it included independent readings by two licensed Clinicians, which were my – who were myself and a Board Certified Child Psychiatrist. So, we independently rated service use for all of the kids on LAMS – in the LAMS study, which I described earlier, and we had consensus meetings to discuss any discrepant readings.
So, the benefits to this approach is that it allowed us to fully utilise all information that was available in the record, to make determinations about treat – patients’ treatment status. It allowed us the flexibility to take into account patients’ comorbidities, their age and other clinical and treatment characteristics, things like a recent inpatient hospitalisation discharge. And it allowed the utilisation of expert knowledge of two Clinicians with complementary expertise.
So, we categorised, again, independently, and then we discussed discrepant readings, we categorised each child service use into one of five different rating groups. So, there was standard of care, which meant that the treatment that the child was receiving was consistent with treatment guidelines, without any clear evidence of any missing components. So, this could be a child with a major depressive disorder, who was receiving an antidepressant and was also hav – receiving CBT. Adequate care would be treatment for the primary diagnosis that was consistent with treatment guidelines and a secondary or less severe diagnosis that was partially treated with no inappropriate or contraindicated treatments. It could also mean partial treatment received for an NOS diagnosis. So, for instance, this might be a child who has ADHD-NOS and was receiving behavioural therapy but was not taking any medication.
Inadequate treatment would be that there was an indicated treatment component that was missing. So, this could be a child with ADHD combined type who wasn’t receiving any treatment, or a child with a major depressive disorder not receiving treatment. Inappropriate care would be – would mean that at least one component of the treatment provided was contraindicated or there was polypharmacy that was not consistent with treatment guidelines. So, an example of this would be a child with, say, bipolar 1 disorder, who was on an antidepressant in the absence of any, sort of, mood stabiliser. And then the last category was treatment pending. So, kids were per – given this reading if there was a treatment that was indicated and there – but there was evidence that it was forthcoming and had not yet begun. So, this might be a child who had in their service use data that they had received an evaluation, or an intake assessment, or that they had had an appointment with say a Psychiatrist or a Psychologist, but were not yet receiving active treatment.
Ultimately, what we did, because this was a lot of different treatment categories, was collapse them into two categories, including adequate, which was standard of care and the adequate categorisation, or inadequate/inappropriate, which included inadequate/inappropriate and treatment pending. Because ultimately, the kids in the treatment pending were not receiving the treatment that was indicated at the time. So, I want to note that all these treatment ratings were provided at the kids’ baseli – from using their baseline service use data. Remember that they were all recruited from – at the screening assessment when it’s their first appointment in an outpatient mental health clinic. And on average, between that first initial screening, into the study and the baseline, the baseline assessment, there was a mean of about 45 days. So, about a month and a half had passed since their first appointment in a mental health clinic and when we were rating the adequacy of their service use and that amount of time did not significantly differ across the five treatment rating groups.
Unfortunately, there was actually very little variability in the treatment ratings for psychotherapy, because caregivers did not often report psychotherapy treatment modalities, so they would frequently report things like talk therapy instead of say CBT or DBT or parent management training. And it could be because they didn’t know, or perhaps they were never told, and there’s actually good evidence to suggest that providers aren’t actually adhering to what they say that they’re doing anyway. So, we fose to – chose to focus the analyses on the adequacy of their medication treatment that they were receiving. So, this is, again, a busy slide, where I just want to draw your attention to what the significant findings were. So, we looked at what was – what were the things that were associated with receiving adequate care? And here we found that youth who were African American or Black were more likely to receive inadequate care than white youth in the study were. Youth whose parents had a bachelor’s degree or greater were less likely to receive inadequate care, and youth who had an anxiety diagnosis were more likely to receive inadequate care. So, I’m going to explain all this in, sort of, plain language here on this slide.
So, only 53% of the kids had received adequate medication for their diagnoses, which, again, I think is too low. Of course, we want that number to be much closer to 100%. In youth whose caregivers had a bachelor’s degree or more education were the most likely to receive adequate care, which is consistent with prior research. Youth with anxiety were more – less likely to receive adequate care, which I was un – not a finding I was expecting, but perhaps anxiety diagnoses were unrecognised or undiagnosed by their treating providers, or perhaps caregivers were resistant to indicated interventions for those disorders. But consistent with our hypothesis, Black youth were less likely than white youth to receive adequate care, and white youth and those who identified as American Indian, Ala – sorry, American Indian, Alaska Native, Asian or bi or multiracial did not significantly differ in likelihood of receiving adequate care.
So, unfortunately, the cell sizes, so the number of participants we had who were – who identified as American Indian, Asian and bi/multiracial was so small that we ended up combining them into one group. So, there were likely some differences within that group that we – this particular study would have been underpowered to detect. But then we did find that Black youth were less likely than white youth to receive adequate care. And this persisted with adjustments for Medicaid status, which is an indicator or limited income. Medicaid insurance is available to families in the United States who have limited income. It persisted with adjustments for caregiver education and clinical characteristics.
So, here we know racial disparities in access to mental health care, again, are well established, as these findings are disappointing but not surprising, and may originate from things like inequitably distributed financial or logistical barriers and systemic barriers. So, again, this replicates racial disparities found in prior research, and it’s a possibility that some of what we’re seeing reflects possible differences in patient and family treatment preferences. But, again, as I mentioned before, treatment preferences and stigma often only – while they’re frequently investigated, don’t ex – tend to only explain a small portion of disparity. So, there are likely other things at play here and there’s a clear need for strategies to reduce barriers and bias.
So, let’s talk a little bit more about that. So, we’ve talked about the – some of the background and history of health disparities and been able to review some of the research that I’ve done in this area. So, I want to spend the rest of our time talking about possible solutions. But first, I want to return to that quote from my mother, when she said, “Our history, history of people of colour is such that if there’s a problem, especially with your child, you use the tools you have. Especially if you’re not sure if seeking professional help is going to do more harm than good.” So, how can we make sure we do more good?
So, briefly touching on things like policy changes. There’s definitely some policy changes that I think would help, so things like making treatment more affordable, increasing access to insurance. Of course, these are changes that are more relevant to here – to us here in the United States, where we do not have universal health care. But one thing that is probably likely helpful, sort of, anywhere, is things like incentivising mental health practice in underserved areas, because as I discussed before, there’s a relatively fewer number of mental health care providers in areas more heavily populated by people from minoritised racial groups.
But I really want to spend more of our time focusing on possible solutions that can be driven by mental health care providers, Researchers, Educators. So, the causes, as we’ve discussed, the causes of the disparities in mental health care are many and varied and so must be the solutions, so let’s talk about what we can do. So, thinking about evidence-based practices, like, how do we decide what is evidence-based? And we decide that through randomised controlled trials. So, we do a randomised controlled trial, if the treatment looked like it was efficacious, then – and, you know, there’s more studies showing that it’s an efficacious or effective treatment, then we decide that it’s an evidence-based practice.
But one potential reason for racial and ethnic disparities in treatment outcomes is the makeup of our randomised controlled trial samples. So, they are predominantly white and middle class, which to me, begs the question for whom practices are evidence-based. So, I think that there’s a clear need to make sure that when we’re conducting randomised controlled trials that we have a diverse participant population, so that we can make sure that our findings are more generalisable. Another strategy that has been posed and implemented is culturally adapted versions of evidence-based treatments. So, such treatments have helped – have been developed to help address the treatment gap that I just described. And there are some culturally adapted intervention that have shown – interventions that have shown benefit over the traditional evidence-based treatment or wait-list control, but there are others that have found mixed results, with really, no treatments being well established for racially minoritised youth.
The other thing about cultural adaptations is that they could present a significant dissemination barrier, as it really, sort of, necessitates that there is no culturally relevant versions of interventions for each of their patients. So, if you think about providers who work in community mental health centres, that might serve clients from multiple different cultural backgrounds, it would really require that they knew culturally – several different culturally relevant interventions to meet the needs of all of their patients. The other thing is that cultural adaptations don’t necessarily allow for individuality within racial groups.
There’s also some evidence that in some cases, the standard evidence-based treatment actually works better than the adapted version. So, another approach that has been offered is person-centred approaches, which really allows the – each patient to describe their own experien – cultural experiences, their own, sort of, cultural definition of their presenting problems and treatment preferences and things like that. So, when I say, ‘person-centred approach’, I mean, showing empathy and unconditional positive regard for patients, recognising that each individual has their own identity, their own needs and their own preferences.
And you might say this is a complicated thing to measure, to assess, and you would be right in saying that, it’s certainly true. But there are some tools, helpful tools, in guiding this approach to assessing a patient’s identity needs and preferences. And one of them is the Cultural Formulation Interview, or the CFI, which is published by the American Psychiatric Association and it’s in DSM-5. And this is another very busy slide, but I just wanted to, sort of, show you what the different areas of focus are in the Cultural Formulation Interview.
So, it gives a patient and their parent or caregiver the opportunity to provide a cultural definition of the problem. So, what does the problem look like from their point of view? How would they describe it to people in their community? What their cultural perceptions are of the causes, con – and contacts and support that they have, so – and what do they think the causes are? What are stressors that they might – perhaps culturally relevant stressors that they might be facing and supports that they have? What role does it – do they see their cultural identity has on – in how – in some of the experiences that they’re having?
It also assesses cultural factors that affect self-coping and past help-seeking. So, it assesses what their current coping strategies are, what their past experiences have been like with help-seeking, what barriers that they have experienced to seeking care. And then the final area is cultural factors that affect current help-seeking. So, what are their treatment preferences? What are they expecting? What concerns do they have about the Clinician-patient relationship? So, really it, sort of, gives the patient the power to describe what’s happening to them, how they’re perceiving it, how they’re experiencing it, in their own words.
So, one – so the – while the Cultural Formulation Interview has been around for quite some time, there had not, previously to a couple of years ago, been any, sort of, randomised control trials looking at whether it was actually effective or efficacious in improving outcomes for youth who participated in it. So, Amy [means Amanda] Sanchez and colleagues did such a study. So, what they did was they randomised caregivers to receive either whatever their usual assessment was, so assessment as usual, or assessment as usual augmented with the Cultural Formulation Interview, which, again, as I described, is a brief caregiver assessment of the cultural factors that affect the child’s problems and family help-seeking. After that intake assessment, whether it was assessment as usual or assessment as usual plus the Cultural Formulation Interview, parents were offered a course of Parent-Child Interaction Therapy, or PCIT. Which is a well-supported behavioural parenting intervention for child behaviour problems and maladaptive family patterns, which many of you are probably familiar with.
So, among this sample of youth with behaviour problems, most of whom identified with a racially minoritised group, this person-centred, so the CFI, the Cultural Formulation Interview, this person-centred assessment at intake, was associated with provider and caregiver satisfaction, with better provider understanding of the patient and family, and improved patient and family engagement in treatment. So, again here, there’s some evidence that among the sample, pred – of predominantly minoritised youth, being given the opportunity to describe the presenting problems and what their treatment expectancies were, and, sort of, how they derive strength from their culture and how their identity might be impacting their presenting problems. So, both ha – giving families the opportunity to describe that, and the provider having the opportunity to understand that, improved treatment engagement and outcomes.
The other thing about this is that having the Cultural Formulation early in treatment can really selp – help to set the groundwork and provide important context for discussions of race-related high profile events that might come up over the course of treatment. The other thing that I want to note is that people, when I talk about the Cultural Formulation Interview, people will ask me, “Well, isn’t this going to add so much time to my intake assessment?” And in the study, it actually only took – I think on average, it was 11 minutes, 11 minutes longer to complete the Cultural Formulation Interview. And if you have a chance to go and look at it, you can do a Google search, it’s easy to find, if you have a chance to go and look at it, the questions – the areas that are covered are often area – topics that you would cover anywhere in an intake assessment. But it gives you the language to help get, sort of the cultural formulation of those items that you would assess anyway. So, it’s really a nice supplement to what people typically use in an intake assessment anyway, but provides some rich cultural information along the way.
Other important solutions – another important solution is to increase workforce diversity. So, again, won’t be a surprise to any of you that people of colour are severely underrepresented among the psychology workforce. So, the figures that I’m presenting here are the US psychology workforce. You can see that top bar is US psychology workforce, the bottom is the US population. So, you can see there’s significant underrepresentation, particularly of Black and Hispanic folks among the US psychology workforce. And there is some hope here in that early career Psychologists, so that’s the fourth bar down, looks a little bit more representative of the US population. So, maybe over time, that will shift, and I think that that’s a good thing.
There’s a similar story in the UK. So, I looked up the racial breakdown of the Psychologists in the UK, and it appears that there’s about – it’s about 92% white, less than 2% Black, and about 6.7% of Psychologists in the UK identify with another race. And I – well, the reason that I’m talking about workforce diversity is not because I believe that we – it is the case that every person from a minoritised – with a minoritised identity has to be treated by another person with a minoritised identity, but there are many benefits to having a diverse workforce, which we’re going to talk about here in just a moment. So, we know that having increased workforce diversity can also increase things like creativity and productivity and reduce turnover in the workplace.
There’s also evidence of provider bias that influences con – clinical decision-making, and mental health treatment may be more susceptible to provider bias, as decisions about treatment are often made by a single provider. So, decisions about things like treatment access, diagnosis and disposition are often made by a single provider, compared to the team-based approaches of many other disciplines. And there’s research sho – suggesting that Black and Latinx or Latino, Latina/e providers show greater cultural competence and are less likely to display racial bias. So, promoting diversity in the workforce is – can be an important component of addressing racial disparities. So, along the same line, so increasing workforce diversity is not just about increasing the number of people who are in a particular profession, and so, actually, sort of, nurturing people along that pathway. It’s improving professional development in working on, sort of, wellbeing and retention among those along the pathway. And so, I wanted to, sort of, briefly discuss some folks who are doing this work really well. So, there’s this one group here in the United States, it’s a graduate student-led – so I’ve been than – grateful to have been a Faculty Adviser to this group called DiSSECT, which is the Dismantling Systemic Shortcomings in Education and Clinical Training. It’s again, a US national graduate student-led organisation that strives to create, collate and disseminate open access resources to measure, assess, evaluate and advance anti-racist initiatives in clinical psychology and related graduate training programmes.
They have a toolkit, so a list of resources that you can access, both – including, sort of, assessments, as well as different ways – they’ve, sort of, collated research on different ways to support graduate students from historically underrepresented groups while they’re in graduate school, to try to support professional development and wellbeing among that group of students. So, you can see the QR code at the bottom of the screen, as well – I’m sorry, the QR code as well as the weblink at the bottom of the screen, if you’re interested in seeing the information that they’ve pulled together. They’ve done a really great job pulling resources on this particular topic.
Another resource that I would like to draw your attention to – so I know we didn’t have a lot of time today, but what I’m hoping to do is to – I help you to identify resources that can help you to learn more, if that’s something that you’re interested in. But I’ve been very lucky to have been able to co-guest edit a Special Issue of the Journal of Clinical Child and Adolescent Psychology on Advancing Racial Justice in Clinical Child and Adolescent Psychology, and I guest edited this issue with Dr Noelle Hurd at the University of Virginia.
So, this issue focuses on two areas that hold the potential to reduce inequitable treatment of children and adolescents of colour in our field, including strategies to address structural barriers that disproportionately impact youth of colour, and approaches to increase representation in mental health care providers of colour. So, again, there’s a – there’s the DOI at the bottom and there’s a QR code. So, all of the articles in the Special Issue are open access, do you don’t – there’s no – you don’t need to pay to look at any of them. So, you can see the full issue for free, using that QR code.
So, our goal in editing the Special Issue was to really highlight that we must adopt an anti-racist approach to treatment and education that acknowledges racial trauma and provides trainees and Clinician education on the mental health impacts of racial trauma, as well as strategies to prevent and treat associated psychological distress. So, as I said before, the causes of racial disparities are varied and so must be the solutions, and so, we did our best to cover a range of topics here.
So, just to summarise, we know that racial and ethnic disparities in access to children’s mental health care are longstanding, and unfortunately, they’re not improving. We really need innovative solutions to create change. Addressing disparities will likely require an all hands on deck approach, with attention not only to policy, but also to inclusive research practices, clinical cultural responsiveness and workforce diversity. And lastly, this is a lot of names on the slide, but I want to acknowledge all of the people that I’ve worked with in – on a lot of the different things that I’ve just been able to present to you. And then, I also want to say thank you to you. Thank you so much for tuning in. I hope that you learned something new today, and if you have questions or you’d like to chat with me about anything that I said, please feel free to reach out. I can be reached at ayoung90@jhmi.edu. Thank you.