Transcript
Beth Cumber Hi, I’m Beth. I’m a PhD student at the University of Warwick, and I’m funded by Birmingham Women’s and Children’s NHS Trust. Today, I’m going to talk a little bit about the planning of my PhD project, which involves some qualitative work and evaluation piece within the field of child and adolescent mental health services.
So, I thought I’d start with a little bit about me. I started my university journey by studying psychology, and then I went onto study mental health nursing and CBT therapy. I’ve worked in both community and inpatient child and adolescent mental health services, which is a bit of a mouthful, so I’ll go on to refer to that as CAMHS from now on. I’ve always been really interested in research and why we do what we do in mental health services, and I was lucky enough to be linked in with my now PhD Supervisor, whilst I was working clinically, and he let me know when this PhD opportunity came up.
I’m really passionate about the opportunities for Mental Health Nurses to get involved in research and, personally, I hope that following my PhD, I can go on to facilitate that link between the clinical and research world and, also, for myself to be working clinically and academically, as well. So, like I said, I’m funded by an NHS Trust, and that is based on me undertaking an evaluation piece of work, up – of a new CAMHS service in the West Midlands. My project’s also going to include a piece of qualitative work, and I hope to look at the experiences of children and young people who’ve been admitted into CAMHS inpatient units from residential care placements, and I’ll also be taking a systematic literature review, looking at systemic approaches in CAMHS care, as well.
So, this PhD project has presented with some challenges, but also some great opportunities, in terms of its planning procedures, so I’ll go on to speak about those today. But, first, I thought I’d give a little bit of background to the project. So, think about why I want to look at this topic, I suppose, most importantly, it’s been informed by my experiences as a Mental Health Nurse, working in the field and, also, the literature that exists. So, in the UK, there have been calls to reform CAMHS services, and this is as a result of high levels of dissatisfaction among young people and also their family and carers.
There have also been long wait times reported within the field, and also levels of – lack of integrated care and co-ordination, as well. And, in England, between December 2019 and April 2021, there was a 47% increase in emergency referrals to CAMHS crisis teams, and it’s unsurprising, as wait times for mental health support increase, that more young people are reaching the point of crisis. And the current demands on our community mental health services mean that whilst hospitalisation rates for most paediatric conditions are decreasing, the rates of admissions into inpatient CAMHS units are increasing.
And mental health inpatient admissions can provide vital, necessary support for children and young people when they need it most. But it is generally recognised that safely avoiding admission into hospital is favourable, and part of the reasons of that are – is because concerns have been raised about the impact of restrictive practices, the use of the Mental Health Act, reliance on medication, and witnessing restrictive practice, the effects that that can have on sustainable wellbeing and long-term recovery for children and young people that have been admitted into hospital.
As we know, as well, there’s a well-established link between trauma and poorer physical and mental health outcomes across the lifespan, and there’s an increased likelihood for those who’ve experienced adversity to need mental health support. We also see higher rates of mental health difficulties and childhood adversity for young people in the care system. And despite these well-established links, mental health intervention often still focus on changing the young person’s behaviour, rather than seeing it as a reasonable response to traumatic life experiences, and the voice of these vulnerable young people is often underrepresented in the literature.
So, as I mentioned, my PhD also involves an evaluation piece of a service called IROC which stands for Intensive Residential Outreach Care, and this was developed in the West Midlands to support vulnerable young people presenting with complex psychological needs. So, IROC provides a systemic approach, so they work with the network around the young person, rather than directly with the young person themselves. So, the network may include social care staff, family members, residential care staff, other agencies, mental health professionals, so it’s bringing all of those people together. And they provide a psychologically and trauma-informed approach, that includes assessment, formulation, supervision, and psychoeducation, and the underpinning aims of this service are to secure, stabilise, support and sustain the young person and their network. They hope that this will build the right clinical treatment pathways for the young person, reduce staff burnout, reduce anxiety within the network, and also help to safely avoid hospital admissions, manage risk, and to reduce placement breakdowns.
So, that brings me onto some of the challenges associated with planning this type of research and evaluation. And, I suppose, one of the main things has been is that IROC is a time-limited pilot, and so there have been some time pressures to prove its worth, which may be slightly different to the timeline of a PhD. Also, mental health interventions are dynamic and they evolve to better address the diverse and changing needs of the population and the wider services. And this evolution is really important, but it can make it difficult to establish a standardised evaluation framework, and it can result in challenges maintaining fidelity to the original intervention model.
Mental wellbeing is influenced by complex interactions between psychological, social and biological factors, and evaluating an in – the effectiveness of an intervention in this field requires capturing the full spectrum of the impacts for everyone involved. Calls to reform mental health services also highlight the need for robust evaluations of new services, and this is so that we can develop a really great evidence base for future service developments. Historically, randomised controlled trials have been seen as the, kind of, gold standard for evaluation. But randomised controlled trials might not always be feasible or appropriate for evaluating complex interventions in mental health services, especially when a lot of this service innovation is happening within small local teams. So, taking a creative study design might be better suited to capture the nuances of these intervention, and providing a holistic understanding of what’s working for who, and in what context.
I’m also currently in the process of applying for ethical approval for my study, and this has presented with some challenges and some hurdles. And I think one of the main things that has stood out to me during this process is that when we’re thinking about this NHS process, it’s the same forms and processes, whether you’re conducting a medical trial with medications, or conducting a qualitative piece of work, like I’ve planned. And so, that’s been quite a lot to get my head around. It has also meant considering all different elements of the project, and thinking about NHS, university, or social care sponsorship, as well. I think, as well, one of the challenges associated with that is, as a PhD student, you’re really keen to get out there, collect data, analyse your findings, to have something to share with people. But, having said that, these things have also provided a lot of opportunities.
So, like I said, debi – despite those delays being frustrating at times, it has allowed me to get a really good understanding of those research procedures, which will be – definitely be really, really helpful if I go on to do more research in this field in the future. I’ve also had the opportunity to work with a great youth advisory group, and their input has been invaluable. And, likewise, meeting with other people who are doing research in this field has really helped to keep me motivated and see what can be done and achieved. I’m also really grateful to my supportive supervisory team, and they’ve helped me to think creatively about how to overcome these challenges and what methods I can use, and supported me to develop the skills, as well, to plan this research. I’d say it’s been a big jump from the clinical world to the academic world, but, with that, there’s been loads of learning opportunities. And I think it’s also given me the chance to reflect on clinical practice, taking that step out of the clinical world has given me a chance to, kind of, breathe and think about my own clinical practice, and hopefully to be a better Clinician and Mental Health Nurse, when I do go back and work with young people.
So, faced with these challenges and opportunities, me and my supervision team have proposed a case study approach to evaluating IROC, and I hope that that will let me look at what’s working for who, and in what context. So, the plan is to collect data across three to five cases, in different contexts. So that might be a network working with a young person in residential care, a network working with a young person in foster care, and maybe across different geographical regions of the West Midlands, as well.
Because it’s a systemic approach, I want to primarily look at what’s working within the network. So, taking the focus away from the young person’s behaviour and thinking about how, when we work with a network in this way, how does that then impact the care that’s provided and the outcomes? So, I’ll collect data by conducting individual interviews, focus groups, and observing key IROC processes, so maybe their assessment sessions, their care planning, and their training sessions, as well.
I then plan to analyse the data for each case, individually, before comparing them, and I hope that this data can then go on to contribute to case mechanism outcomes, that will help provide some explanations of some of the experiences and outcomes associated with this approach to providing care. So, like I said, I hope that this approach provides a useful answer to some of the challenges associated with planning an evaluation of a complex intervention like IROC, and, also, will provide a useful exploration of how it’s being received on the ground, and what’s working for who. I hope that this can then be used to make sure that services are meeting the needs of this vulnerable population, and that we can share learning from other interventions in this field.
I’m also looking forward to developing my research skills in these methods, and hopefully highlight how something like this can be used for other evaluations of complex interventions. And, I think, most importantly, I really hope that my research in this area will give a voice to children and young people who have been admitted to hospital from residential care, and make sure that their voice is represented in the literature, and that when we think about future service developments, their voice and their experiences that are at the core of those developments.
Thank you very much for listening.