Description

In this talk, Melissa Mulraney describes the development of a set of patient-centered outcome measures for children and young people with neurodevelopmental disorders. These disorders, which affect brain development and function, include ADHD, communication disorders, motor disorders, and specific learning disorders. She explains what measurement-based care is and why it is important. She also outlines the process followed to create the set, which involved a global working group of experts and individuals with lived experience collaborating to identify key outcomes and recommended measurement tools. The final set includes 12 outcomes across core symptoms, impact on functioning and quality of life, and common co-existing problems, with 14 recommended measures. The presentation emphasizes the need for psychometrically sound patient-reported outcome measures and highlights the challenges in selecting appropriate tools for some outcomes. The set aims to standardize and improve the measurement of treatment outcomes for neurodevelopmental disorders globally.

Learning Objectives

A. To understand the concept of neurodevelopmental disorders;

B. To understand the concept of measurement-based care and it's importance in healthcare settings;

C. To become familiar with the ICHOM approach to measurement-based care and the Neurodevelopmental Disorders outcome set.

Related Content Links

Neurodevelopment and epigenetics